April 30, 2023

Still waiting on a bed at the bigger hospital but I’m not surprised. Dr continues to dig into other autoimmune disorders too – 7 vials of blood today – I’m just glad my veins have decided to cooperate, unlike the first two days. I also finally got an oxygen tank so that I could walk the hallways some

The bed for the other hospital became available at 4 PM, I was transferred by ambulance and arrived around 5 PM. Within an hour I was seen by the admitting physician there and the lung dr. They have placed orders for rheumatology, but I don’t think they come to the hospital, but maybe by some miracle it will happen.

The lung dr has decided with just a bronchoscopy biopsy, he feels an open is too risky at this time given my “unknown” autoimmune status and he thinks he can get the tissue he needs with the bronch. Hopefully they can get this scheduled for tomorrow, but this is Sunday evening so I’m not expecting anything.

I am on the unit at the bigger hospital where I use to work and also served as an assistant nurse manager. Tonight’s charge nurse has reached out to the nurse manager, and they are going to move me to a private room when the patient that is in that room discharges. What a blessing this is! Now my children can also come without feeling like we are taking over the entire semi-private room I was in. Now to try to get some SLEEP!

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