Nov 7th – today’s the day! I saw Dr. L last week and he is basically waiting to see what Dr. G has to say. He seems to be quite a bit more concerned about me, but the last two visits I’ve been more concerned about myself. I think because I usually greet him with I’m ok when he asked how I’m doing and that hasn’t been the case the last two times. But all of the weight I lost earlier in the year I have gained back in just a few week period from the pulmonary hypertension and subsequent mild heart dysfunction so even though he says that I’m in the window for needing a transplant I’m now not a candidate because my BMI is too high. It’s just a vicious circle.
I have another echocardiogram and unfortunately the results are back when I meet with Dr. G. She seems pleased with the results of the Tyvaso and diuretics so far but without the echo she can’t really give me any real prognosis, just stay the course and she will message me when she has the results.
My benefit dinner is later that same day. WOW! Can I just say that people are amazing. We had such a great turn out. There wasn’t a parking space or a seat left in the place. People from all aspects of our lives, even a few people we didn’t even know. I can’t even express the amount of love and support I felt that night What I can say that between the GoFundMe and the money raised by this dinner has met almost 2/3 of the amount that the social worker at Cleveland Clinic told us to have on hand for transplant. I think I cried several times that night. Thank you again to anyone reading this that played any role in these at all. (I’ve tried several times to upload pictures from that night and it isn’t working, sorry)
And the night ended with the best news! Dr G sent me a message that the echocardiogram showed improvement!
