The last two days have gone pretty well. Felt pretty “normal” if you can call it that. No real side effects from the CellCept – guess we will see next week how doubling the dose goes. I don’t really feel like it has progressed any – the fibrosis, I mean. I just wish there was a way to reverse it. But I have to leave that in God’s hands. I will continue to pray and trust in Him (FROG, I guess). I know the doctors have me on the right treatment plan because I’ve done my own research (see screen shots of the charts I saved on my phone, these were from May 23rd, probably one of the reasons I was so emotional that day). I will do my part, take my medications, try to eat better, stay active as much as possible. Other than that, I’m just going to enjoy everything I can for as long as I can.
Based on my PFTs, I have moderate/severe PF already as my FVC is 54% and my DLCO is 46%. MMF is the preferred first line of treatment – MMF is mycophenolate Mofetil – the generic form of CellCept.